Saturday, January 28, 2012

The first week of many baby steps!!

Yea .... we have one week behind us!  The clinic is not open on the weekends so we have a break as long as I am on an "out patient" basis.  It is very gloomy here today.  When the clinic is not open, the shuttle does not run so Jeff and I walked two miles (round trip) to Walgreens for our Saturday fun!!  I wonder what tomorrow has in store for us??  

My last Caringbridge update was before my bone marrow biopsy, lumbar puncture and skin biopsy.  I was really dreading those tests!!  Actually the procedures were not bad.  I elected to have an IV sedation using a medicine that causes temporary amnesia.  I had it once when in the hospital in Omaha.  It is so amazing!  I was awake through the procedures but very relaxed.  Although they gave local anesthetic, I could still feel pain occasionally but I don't really remember the details.  It's weird how that medicine works!

We have a full week next week!!  I just pray that my tests come back with good results and we can move to transplant!! 

That's all the news for now.  I will let you know what happens next week.

Love to you all!

Thursday, January 26, 2012

We're here .... no more waiting!

Good morning!

It's Thursday morning, our third day in Seattle.  I am so excited to be here, I've met with two of the doctors and I really like them.  Not that liking them really matters, but it's nice to have doctors that you look forward to seeing.

Traveling here wasn't the easiest!  We were supposed to leave Omaha at 12:40pm and arrive in Seattle at 5:35pm.  We got to the airport early, got through security and was happily waiting at our gate when Jeff noticed the flight we were taking was not even listed on the "departure" board.  We soon find out that due to mechanical reasons, our plane had been grounded.  After several itinerary changes we were booked on a sold out flight to Phoenix hoping for the best.  We made it to Seattle but our luggage didn't. 

The first two days of appointments went well, I just feel that I am in the right hands.  Every organ in my body will be checked prior to transplant.  Although I am one of those people that "just really don't want to know", it is comforting to know that I am probably having one of best physicals I've ever had! 

Today are a couple of biggies!  I am having a bone marrow biopsy to make sure my cancer is still in remission.  I will also have a lumbar puncture (spinal tap) to ensure that I do not have cancer cells in my spine.  I will also get a skin biopsy.  That is because I agreed to participate in MANY studies and one requires a skin biopsy.  I'm glad to do it!!  I am in Seattle today because of people participating in studies!!

Thank you for all of your prayers!!  They are working!  I feel strong and have peace of mind.  Please continue  to remember us in your prayers. 

God bless you!

Thursday, January 19, 2012

Seattle's Right Around the Corner

Hi everyone!

Today is Thursday, Jeff and I leave on Monday, 1/23, for Seattle!!  I cannot tell you how excited I am!!  I really hope I can get the cord blood transplant...we will not know for sure until I actually get to Seattle and more testing is done.

It is in God's hands and I'm just along for the ride!!  :-)  God willing, I hope the transplant is a success and I can start helping others.  Today was so rewarding for me because Ashley, Jeff and I helped at a local bone marrow drive and I was asked to "say a few words."  There ARE NOT words to express how this experience touched me.  I was expressing the need for bone marrow donors...not for me but to help other people like me!!  According to my plan, and hopefully God's, this was only the beginning! 

Please keep my family in your prayers.  I am hopeful 2012 will be our year to reach out to others in need like so many of you have helped me.

God bless you, I love you all!!